Well, it has been a year since the last post, so long that I have forgotten how to actually log in to this site... I'm pretty happy about that as it shows that nothing much is going on medically. Big changes of course otherwise, with a tree change, hair long enough to plait and a 4th birthday all coming in the last 12 months. Some things don't change though, dinosaurs, chocolate and orange remain a big hit as you can see. For good measure here is a pic of Emily who is rapidly catching Mum in the height department, now that she is a big girl of 6 going on 25 and all, and making a pretty good pirate dancer too:
We're just back from Abigail's two year check-up post transplant. Hard to believe it has been two years, some days it feels like 10, some yesterday, but on Sunday the 28th she'll clock up day 712, a massive milestone: her chances of relapse are, at that point, down to those of the normal population developing leukaemia initially.
In addition to a bone marrow aspirate, there were examinations of her heart, eyes and ears. Her eyes and heart are all fine, with no ill effects to be seen. Her hearing has been slightly compromised though, probably by the antibiotics she received when spiking fevers during chemo. Fortunately it is relatively mild and shouldn't affect her learning or require any intervention. In truth her father is far worse of hearing, not to mention older relatives...
Blood tests were all within the normal range, and she underwent the last planned Bone Marrow test and general, a very exciting event. As usual, she was incredibly tough and stoic about it all, and hadn't forgotten how to put on BP cuffs and use thermometers and so on. There were a few tears about upcoming needles, but luckily they were able to do all blood collections whilst she was knocked out.
In some ways treatment now is harder than when she was little, as Abi certainly knows what is going on. However that also helps, as you can explain why things need to happen and she'll then work it out herself. Unfortunately Mum and Emily were sick this time, so were unable to make this trip. Before the test all she wanted to do was go back home. After explaining what that we needed the test before we could go, and that the quicker she got it done the faster we'd be out the door, she agreed. This took the now familiar process of first getting the usual frown for a few seconds, before you get the stare from those gorgeous steely blue eyes whilst things are being thought out. In true Abigail style she then nodded and walked over to the doctors to be put under and get things underway! A really tough kid that amazes me constantly with her strength and will power. Look out anyone that crosses her down the track I reckon...
Afterwards she just wanted home, and was a little upset, but soon calmed down after half an hour or so, and her current favourite treat, mint slice biscuits:
As you can see she did eventually eat something remotely healthy and in fact spent most of the entire 7 hour drive home eating! She was also chatting about how she almost blew up the aneasthetist's balloon when inhaling the gas, and how she had not one, but TWO needles without feeling them (about which she was very chuffed). She was laughing and giggling by the time we were given the OK to go, and in fact I had to put my foot down to leave as by that stage she was into a Spongebob movie and wanted to stay.
So, fingers crossed that the latest Bone Marrow Aspirate results are clear. If that is the case than there will be no more tests other than annual check-ups, probably at least until 5 years post, but likely longer. So, this week marks what will hopefully be a new stage in our lives. A little scary without the crutch of frequent blood tests, and I'm sure we'll agonise over every bruise to come, but one in which hopefully she only gets the needles that other kids get, such as immunisations, and the trials of bone marrow assessment are a thing of the past. I'll post the results when they come in a month or two down the track, but fingers crossed that will be the last post here.
So, fingers crossed that the latest Bone Marrow Aspirate results are clear. If that is the case than there will be no more tests other than annual check-ups, probably at least until 5 years post, but likely longer. So, this week marks what will hopefully be a new stage in our lives. A little scary without the crutch of frequent blood tests, and I'm sure we'll agonise over every bruise to come, but one in which hopefully she only gets the needles that other kids get, such as immunisations, and the trials of bone marrow assessment are a thing of the past. I'll post the results when they come in a month or two down the track, but fingers crossed that will be the last post here.