Saturday, November 14, 2009

First tests back OK

Another week down and nearly 80 days post transplant now. We're finally getting some lab results back, and the initial ones are good. Only donor (Emily's) cells were found in a sample of Abigail's bone marrow taken a few weeks after transplant. This is good news as it confirms proper engraftment, but more importantly that the engraftment is based on her new cells rather than her old, potentially still cancerous ones. A similar test is underway on a more recent sample, with results expected soon.

A little bit of excitement this week too, with her central line cracking. Luckily the hospital could repair it with a fancy version of a bike puncture repair kit, and no overnight stays were required. No temperatures or the like followed so it seems that the access point wasn't compromised. Unfortunately both girls have a bit of a runny noise at the moment, but neither have spiked a temperature. We'll keep monitoring things, but as you can see both girls remain themselves despite whatever the bug it is. Hopefully it is something minor that will clear up on its own without further intervention.

So, we'll let you know when more tests come back, but for now everything is as we would hope.

Monday, November 2, 2009

No news

No real news since the last posting. Still no word on any of her tests from last week, and things are pretty much the same at home. This means that Abigail has now been home for over a month without re-admission.

Sleeping is still an issue, with a daytime sleep required though not often taken, hence mum has resorted to the secret weapon on the right. These new bean bag chairs usually do the trick! During the night it is a different story, as not much seems to work when trying to get her to sleep. We're trying some new things this week, in an effort to get everyone back into a better routine.

Food and fluid intake is still a struggle, but most days she is taking enough onboard. The biggest concern has been Emily contracting a bout of croup. Thankfully she was able to stay with Nanna and Pop for a week. This seemed to be a long week for all concerned, and perhaps not the last week of holidays Pop had envisaged! It seems to have done the trick though, knock on wood, as so far Abigail is symptom-free. Poor Emily on the other hand has to wash her hands about 400 times a day in the meantime. But, all in all another pleasingly uneventful post.