Countdown update

The countdown to transplant began this Monday, with the first batch of chemo drugs ending tonight (she receives 3 different types leading up to transplant). So far Abigail has been a bit flatter than usual, and has been quite nauseous at times. This has meant her diet is now whatever we can get her to take in, so pikelets and chocolate milk for lunch is now on the cards as you can see.

Her blood product titres are all good at present, and she has yet to lose any weight. Drinking is a bit of a problem, so she has been on fluids to help out with this again today. Tomorrow marks the beginning of a different drug that is likely to make her feel quite ordinary, so we're hoping she copes with this latest challenge with her usual aplomb.

She is also now in a single room again, so has a small desk and chair to use when she is up to it. This also means that she has the run of the room when not getting IV treatment, and can play music and sleep whenever she is ready. This is much easier on everyone than trying to fit our life around other kid's schedules. The room also overlooks one of the entrances to the hospital, so she also enjoys sitting at her desk watching the strange people folk wander by during the day.

I've said this before, but so far so good. Not such a bad thing to be repeating, but expect things to get rougher for a while starting tomorrow.