Discharged!

After 6 weeks to the day in hospital, Abigail was finally discharged on Monday. As you can see she is still receiving some feeds and a truckload of meds each day, but she is also now at home in her own bed.

Her blood has continued to improve, and she now has at least some protection against bacterial infections. However, as a side-effect of essentially anti-rejection medication, she does not have any T-cells. Thus she has little defence against viruses, so even the common cold is very dangerous for her at present. We can't stay in isolation over the 12 months it is going to take for her to rebuild her immune system completely, but we will have to remain vigilant and take all necessary precautions that we can in the meantime.

It has been a great relief to get everyone home again under the one roof, and with some gate leave prior to discharge the girls were able to witness the big game (commiserations to some fans of the opposition that I know are reading this, GFC folk know exactly how you feel!). Emily has also returned to daycare and her dancing this week, so some semblance of normality is slowly returning. Lots of clinic check-ups await (3 a week to start), but these will gradually become less and less frequent, with larger check-ups, tests and scans scheduled for every three months. A little surreal to not have a definitive plan for the 'next step', but fingers crossed she continues to slowly recover and that this last hospital stay was her last.