Still home

Abigail has been home from hospital for over a week now and has finally started settling into her own bed. There have been a few hairy moments, most notably when she has lost her nasal gastric tube while vomiting. This has happened twice now, though thankfully she is becoming more accustomed to having them re-inserted and calms down much faster now after the process finishes.

More worryingly Abi also picked up a bit of a runny nose and cough, but thankfully seems to have gotten over this without a fever or any additional medication. Not unsurprisingly this has coincided with the period where Emily and Dad have gone back to daycare/work and thus we are bumping into a lot more people now. Highlights how careful we're going to have to be I suppose.

Apart from that things have changed little, she is still having supplemental feeds via the NG tube (when it is in) as her appetite is still fairly low. She does eat lots of pasta, so as a result I think we'll be eating spag bol and garlic bread 4 nights a week from now on. She is putting some weight on, so that is the main thing. Her kidney's have improved and there has not been a need for an electrolyte infusion since being discharged, and the rest of her blood work remains pretty good. A slight drop in haemoglobin levels means she might need some more blood soon, though we hope that this will pick up (hence the red meat diet). Other than that she has also had a few issues with apparent muscle wastage in her legs, something not unexpected given the length of time she was confined to a bed. This appears to be easing so we're hopeful that the only treatment for this will be lots of running around after her sister.

I shall try to keep updating the blog as regularly as I can, but in the interests of saving you from lots of 'nothing new posts', you can safely assume that no news is good news.